Standardised Outcomes in Nephrology-Polycystic Kidney Disease (SONG-PKD): study protocol for establishing a core outcome set in polycystic kidney disease.

Yeoungjee ChoBenedicte SautenetGopala RanganJonathan C CraigAlbert C M OngArlene ChapmanCurie AhnDongping ChenHelen CoolicanJuliana Tze-Wah KaoRon GansevoortRonald PerroneTess HarrisVicente TorresYork PeiPeter G KerrJessica RyanTalia GutmanMartin HowellAngela JuKarine E ManeraArmando Teixeira-PintoLorraine A HamiwkaAllison Tong

Published in: Trials (2017)

The SONG-PKD core outcome set is aimed at improving the consistency and completeness of outcome reporting across ADPKD trials, leading to improvements in the reliability and relevance of trial-based evidence to inform decisions about treatment and ultimately improve the care and outcomes for people with ADPKD.

Keyphrases

polycystic kidney disease
healthcare
clinical trial
study protocol
emergency department
quality improvement
pain management
weight loss