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Developing a topic-based repository of clinical trial individual patient data: experiences and lessons learned from a pilot project.

Nancy MedleyAnna CuthbertRichard CrewLesley StewartCatrin Tudur SmithZarko Alfirevic
Published in: Systematic reviews (2021)
We would recommend that researchers conducting IPD meta-analysis should consider discussing the option to transfer the curated IPD datasets to a repository at the end of the initial meta-analysis and this should be recognised within the data sharing agreements made with the original data contributors.
Keyphrases
  • systematic review
  • clinical trial
  • electronic health record
  • big data
  • meta analyses
  • study protocol
  • quality improvement
  • case control
  • health information
  • data analysis
  • double blind