A national open-access research registry to improve recruitment to clinical studies.

Piers Kotting Adam SmithMegan B O'HareClarissa M Giebel Lakshini H S MendisClare ShawImogen ShillitoMartin N Rossor

Published in: Alzheimer's & dementia (New York, N. Y.) (2021)

Public registries of individuals interested in research, with user-provided data enabling basic phenotyping, are effective at increasing public engagement with research and removing barriers to study recruitment. Deeper pheno/genotyping could be undertaken to improve matching, but how and when that information is collected will be a key factor.

Keyphrases

healthcare
high throughput
mental health
minimally invasive
social media
genome wide
quality improvement
electronic health record
big data
health information
adverse drug
gene expression
machine learning
single cell
genetic diversity
data analysis