Development of the American College of Rheumatology's Patient-reported Outcome Quality Measures for Systemic Lupus Erythematosus.
Patricia P KatzClaire E H BarberAli Duarte GarciaShivani GargWambui MachuaWendy RodgersYesenia Santiago-CasasLisa G SuterChristie M BartelsRebecca GraingerPublished in: Arthritis care & research (2024)
Expert workgroup members and patient partners recommend that clinicians assess depression and physical function at least once yearly in all people with SLE. Additional PROMs addressing cognition and fatigue can also be assessed. Next steps are to incorporate PROM-based quality measures into the ACR's RISE registry.
Keyphrases
- patient reported outcomes
- systemic lupus erythematosus
- disease activity
- sleep quality
- depressive symptoms
- palliative care
- case report
- mild cognitive impairment
- rheumatoid arthritis
- juvenile idiopathic arthritis
- white matter
- physical activity
- multiple sclerosis
- hepatitis c virus
- human immunodeficiency virus
- hiv testing