"Do I want to know it all?" A qualitative study of glioma patients' perspectives on receiving information about their diagnosis and prognosis.

Annika MalmströmLisa ÅkessonAkihiro InoueMunila MudaisiHelena Bruhn Michael Strandeus Marit Karlsson

Published in: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer (2020)

There is a need to further develop and implement individually tailored information to glioma patients, both in consultations and patient-accessed EHR systems, which should have safe guards for sensitive information. Not all patients want to know it all, one size does not fit all.

Keyphrases

end stage renal disease
newly diagnosed
chronic kidney disease
peritoneal dialysis
prognostic factors
case report
patient reported