Management of severe ME/CFS in children and young people in the UK: a British Paediatric Surveillance Unit study.
Alexander Peter RoystonSarah BurgeIlaria IdiniAmberley BrigdenKatharine Claire PikePublished in: BMJ paediatrics open (2024)
Full investigation is frequently incomplete in CYP with suspected severe ME/CFS and recommendations for referral and management are poorly implemented, in particular the needs of CYP who are unable to leave their home might be poorly met.