Assessment of self-/parent-reported quality of life in Japanese children with haemophilia using the Japanese version of KIDSCREEN-52.
Yasuko FuruichiKeiji NogamiKoji YadaSatoko NezuKenji ObayashiKeigo SaekiNorio KurumataniMitsuru NakajimaSeiji KinoshitaMidori ShimaPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2020)
Proactive mental and clinical care in haemophilia families, especially with young children, will foster a better environment for patients and their parents and ease concerns about progress in haemophilia.