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What do parents think about the quality and safety of care provided by hospitals to children and young people with an intellectual disability? A qualitative study using thematic analysis.

Natalie OngAbbie LucienJanet C LongJanelle WeiseAnnette BurgessMerrilyn Walton
Published in: Health expectations : an international journal of public participation in health care and health policy (2023)
Parent advocates in the project advisory team were shown the questions to determine their appropriateness for the interviews.
Keyphrases
  • intellectual disability
  • quality improvement
  • autism spectrum disorder
  • healthcare
  • palliative care
  • young adults
  • pain management
  • health insurance
  • affordable care act
  • chronic pain