Patient Perception of Disease-Related Symptoms and Complications in Relapsing Polychondritis.
Marcela A FerradaPeter C GraysonShubhasree BanerjeeKeith A SikoraRobert A ColbertNinet SinaiiJames D KatzPublished in: Arthritis care & research (2018)
Patient-reported data in RP highlight a significant burden of disease. Patterns of organ involvement may lead to diagnostic delay and influence treatment decisions, ultimately impacting the development of disease-related complications. Timely diagnosis, standardization of treatment approaches, and prevention of disease-related complications are major unmet needs in RP.