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Conceptualizations of consciousness and continuation of care among family members and health professionals caring for patients in a minimally conscious state.

Kristin Marie Kostick-QuenetAbby HalmKatherine O'BrienSunil KothariJennifer S Blumenthal-Barby
Published in: Disability and rehabilitation (2019)
Findings can help optimize family-provider communications about minimally conscious patients by acknowledging shared assumptions and interpretations of consciousness, as well as key areas where perspectives diverge.Implications for rehabilitationFamily and professional caregivers' interpretations of consciousness and suffering are implicated in decisions about continuing rehabilitation for minimally conscious patients.Family members and healthcare providers both rely to some extent on non-observable evidence to evaluate consciousness, which may be an adaptive and philanthropic response to clinical uncertainty.Acknowledging shared assumptions and interpretations of consciousness, as well as diverging perspectives, can help to optimize family-provider communications.
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