Short bowel syndrome and the impact on patients and their families: a qualitative study.

Anne Marie SowerbuttsC PanterG DickieB BennettJ AblettS BurdenS Lal

Published in: Journal of human nutrition and dietetics : the official journal of the British Dietetic Association (2020)

Patients and families face many difficulties with SBS-IF. Healthcare professionals can support patients by facilitating them explore what others have found beneficial; adapting their life around PN, viewing PN with acceptance and trying to cultivate gratitude. Further research into the support required for families may be beneficial.

Keyphrases

end stage renal disease
newly diagnosed
chronic kidney disease
peritoneal dialysis
prognostic factors
patient reported outcomes
patient reported
case report