Decision Aids for Patients With Head and Neck Cancer: Qualitative Elicitation of Design Recommendations From Patient End Users.
Eleah StringerJulian J LumJonathan LivergantAndre W KushnirukPublished in: JMIR human factors (2023)
All participants felt an eDA, used in the presence of their oncologist, would support a more thorough and transparent explanation of treatment or augment the quality of education received. Participants liked the simple design of the mock-ups they were shown but, ultimately, desired customizability to adapt the eDA to their individual information needs. This research highlights the value of user-centered design, rooted in acceptability and utility, in medical health informatics, recognizing cancer survivors as the ultimate knowledge holders. This research highlights the value of incorporating visuals into technology-based innovations to engage all patients in treatment decisions.
Keyphrases
- healthcare
- end stage renal disease
- newly diagnosed
- public health
- chronic kidney disease
- ejection fraction
- mental health
- health information
- young adults
- decision making
- systematic review
- prognostic factors
- quality improvement
- machine learning
- case report
- climate change
- artificial intelligence
- patient reported outcomes
- risk assessment
- social media