Identifying experiences of supportive care of children and young people affected by kidney failure: A qualitative systematic review.
Catherine PatersonMurray TurnerMary HooperE LadbrookL MacauleyA McKiePublished in: Journal of renal care (2023)
This systematic review identified that children and young people affected by kidney failure can experience a range of unmet supportive care needs in routine clinical services. Kidney failure impacted children and young people's self-identify, social and peer networks, introduced daily practical needs because of inherent physical and psychological burden due to the failure and associated treatments. Despite improvements in the medical management of kidney failure in children and young people, further attention is needed to optimise supported self-management in this young patient group.