Work productivity, quality of life, and care needs: An unfolding epilepsy burden revealed in the Australian Epilepsy Project pilot study.
Clara MarquinaEmma FosterZhibin Chen MBiostatDavid Noel VaughanDavid F AbbottChris TailbyGraeme D JacksonPatrick KwanZanfina Ademinull nullPublished in: Epilepsia open (2024)
This is a pilot study from the Australian Epilepsy Project (AEP). It reports health economic data for adults of working age who live with epilepsy. It found that people with focal drug-resistant epilepsy had lower quality of life scores and were less likely to participate in paid employment compared to people with new diagnosis epilepsy. This study provides important local data regarding the burden of epilepsy and will help researchers in the future to measure the impact of the AEP on important personal and societal health economic outcomes.
Keyphrases
- drug resistant
- healthcare
- quality improvement
- multidrug resistant
- temporal lobe epilepsy
- palliative care
- acinetobacter baumannii
- electronic health record
- climate change
- emergency department
- skeletal muscle
- machine learning
- big data
- health information
- pseudomonas aeruginosa
- cystic fibrosis
- chronic pain
- risk assessment
- deep learning
- weight loss