International Initiative for Outcomes (INFO) for vitiligo: workshops with patients with vitiligo on repigmentation.
Viktoria EleftheriadouIltefat H HamzaviAmit G PandyaP GrimesJ E HarrisR H HugginsH W LimN ElbulukB BhatiaA Tovar-GarzaA F NahhasT BraunbergerKhaled EzzedinePublished in: The British journal of dermatology (2018)
This was the largest patients' outcomes workshop. We followed the guidance from the CSG-COUSIN and the Vitiligo Global Issues Consensus Group. Our recommendations to use percentage of repigmentation quartiles (0-25%, 26-50%, 51-79%, 80-100%) and the Vitiligo Noticeability Scale are based on the best available current evidence. A limitation of the research is that the workshops were conducted only in the U.S.A., due to pre-existing organisational support and the availability of funding.