Feasibility of a Website and a Hospital-Based Online Portal for Young Adults With Juvenile Idiopathic Arthritis: Views and Experiences of Patients.
Judy Jw AmmerlaanLieske W ScholtusConstance Hélene Christine DrossaertHarmieke van Os-MedendorpBerent J PrakkenAike A KruizeJohannes W J BijlsmaPublished in: JMIR research protocols (2015)
The young adults considered both the website and the online portal as feasible, but they also had valuable suggestions to improve accessibility and use. Based on these findings, a news and event section was added on the website and a direct link was made to a discussion board and social media. To provide and support health information, the website is actively used in daily care. Considering the online portal, the use of self-monitoring tools and e-consult can be stimulated if there is direct linkage to treatment and feedback from the multidisciplinary team. Feasibility testing, before implementing the website and online portal in daily practice, has proven to be a valuable step. Results led to improvements in terms of integration into standard care and topics for further research.
Keyphrases
- health information
- social media
- quality improvement
- healthcare
- juvenile idiopathic arthritis
- palliative care
- young adults
- end stage renal disease
- chronic kidney disease
- newly diagnosed
- ejection fraction
- physical activity
- primary care
- pain management
- mental health
- prognostic factors
- middle aged
- genome wide
- systemic lupus erythematosus
- hiv infected
- disease activity
- combination therapy
- affordable care act
- hepatitis c virus
- gene expression
- high density
- childhood cancer
- smoking cessation
- chronic pain