Registration of Amyotrophic Lateral Sclerosis: Validity in the Danish National Patient Registry.

Lotte Sahin Levison Prof Peter Jepsen Henning Andersen

Published in: Clinical epidemiology (2024)

We found a high PPV of primary diagnostic codes for ALS from Danish departments of neurology, demonstrating high validity. Thus, the DNPR is a well-suited data source for large-scale epidemiological research on ALS.

Keyphrases

amyotrophic lateral sclerosis
quality improvement
electronic health record
big data
data analysis