Emotional experience of the diagnostic process of a rare disease and the perception of support systems: A scoping review.
Laia Llubes-ArriàMontserrat Sanromà-OrtízAlba Torné-RuizElena Carillo-ÁlvarezJudith García-ExpósitoJudith RocaPublished in: Journal of clinical nursing (2021)
This review provides evidence on the emotional impact of the diagnostic process and during the communication phase of the definitive diagnosis. Health systems and professionals must be strengthened in order to improve the information, training and resources. Nurses can play a key role in coordinating communication and follow-up of those affected.