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Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study.

Marlene SinclairJulie E M McCulloughDavid ElliottAnna Latos-BieleńskaPaula BrazClara Cavero-CarbonellAnna Jamry-DziurlaAna João SantosLucía Páramo-Rodríguez
Published in: Journal of medical Internet research (2019)
Social media is a valuable facilitator in the coproduction of research between parents and researchers. From a theoretical perspective, ocularcentrism can be an applicable frame of reference for understanding how people favor visual contact.
Keyphrases
  • social media
  • health information
  • young adults