Parent preferences for neurodevelopmental screening in the neonatal intensive care unit.
Rebecca A DornerRenee D BossVera Joanna BurtonKatherine RajaMonica E LemmonPublished in: Developmental medicine and child neurology (2020)
Most parents with infants in the neonatal intensive care unit expressed interest in early screening for developmental disability. Prior experience with disability informed concerns about specific deficits. Parents emphasized a desire for autonomy, pretest counselling, and emotional preparation.