Quality of life of children with tuberous sclerosis complex.
Meow-Keong ThongKexin NgAnn Nie KongLai Choo OngMohamed Ahmad RithauddinMeow Keong ThongVigneswari GanesanHock Sin HengChee Ming TehNorazni YahyaPublished in: Archives of disease in childhood (2019)
Parents of children with TSC reported lower PedsQL V.4.0 QOL scores in all domains, with psychosocial health most affected. Older children, those with internalising behaviour problems, of Chinese ethnicity or on >1 AED was at higher risk of lower QOL. Clinicians need to be vigilant of QOL needs among children with TSC particularly with these additional risk factors.