Perceptions of anonymised data use and awareness of the NHS data opt-out amongst patients, carers and healthcare staff.

Catherine AtkinB CrosbyK DunnG PriceE MarstonC CrawfordM O'HaraC MorganM LevermoreS GallierS ModhwadiaJ AttwoodS PerksA K DennistonG GkoutosR DormerA RosserA IgnatowiczH FanningElizabeth Sapeynull null

Published in: Research involvement and engagement (2021)

The majority of participants in this study reported that the use of healthcare data for secondary purposes was acceptable when accessed by NHS. Academic and health-focused companies. However, awareness was limited, including of the NDOO. Further development of publicly-agreed recommendations for secondary health data use may improve both awareness and confidence in secondary health data use.

Keyphrases

healthcare
electronic health record
public health
big data
end stage renal disease
patient safety
newly diagnosed
ejection fraction
primary care
chronic kidney disease
machine learning
peritoneal dialysis
health promotion
human health
quality improvement
health insurance