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Finding Out What Matters in Decision-Making Related to Genomics and Personalized Medicine in Pediatric Oncology: Developing Attributes to Include in a Discrete Choice Experiment.

Maria C McCarthyRichard De Abreu LourencoLaura J McMillanElena MeshcheriakovaAlice CaoLynn Gillam
Published in: The patient (2021)
This study identified eight candidate attributes that will be further validated prior to developing a DCE aimed at better understanding factors influencing decision-making related to genomic sequencing and personalized medicine. This study and the proposed DCE will contribute to improving ethical and clinical practices in the application of novel genomic technology in pediatric oncology.
Keyphrases
  • decision making
  • palliative care
  • healthcare
  • primary care
  • single cell
  • copy number
  • dna methylation
  • magnetic resonance
  • young adults
  • contrast enhanced
  • genome wide
  • drug induced