A qualitative analysis of patient and caregiver experiences with myelomeningocele through online discussion boards.

Shriya Koneru Sanjeevani Bhavsar Sangami Pugazenthi Gretchen M Koller Sasidhar Karuparti Michael R Kann Jennifer M Strahle

Published in: Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery (2024)

MMC is a complex medical condition that impacts patients and families in unique ways. Analysis of online discussion board posts identified key themes to be addressed in order to improve the healthcare experiences of those impacted by MMC.

Keyphrases

healthcare
end stage renal disease
health information
mental health
social media
newly diagnosed
ejection fraction
chronic kidney disease
case report
patient reported outcomes