Using "Real-World Data" to Study Cleft Lip/Palate Care: An Exploration of Speech Outcomes from a Multi-Center US Learning Health Network.
Kristina DunworthBanafsheh Sharif-AskaryLynn GramesCarlee JonesJennifer KernJillian Nyswonger-SuggArthur SuárezKaren ThompsonJessica ChingBrent GoldenCorinne MerrillPhuong D NguyenKamlesh B PatelCarolyn R Rogers-VizenaS Alex RottgersGary B SkolnickAlexander C AlloriPublished in: The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association (2023)
This exploration of speech outcomes demonstrates the current ability of the cleft-specific registry to support cleft research efforts as a source of "real-world" data. Further work is focused on developing robust methodology for hypothesis-driven research and causal inference.