Using Administrative Data to Ascertain True Cases of Muscular Dystrophy: Rare Disease Surveillance.
Michael G SmithJulie RoyerJoshua R MannSuzanne W McDermottPublished in: JMIR public health and surveillance (2017)
Accuracy of finding a true case in a passive surveillance system was improved substantially when specific diagnosis codes, number of times a code was used, age of the patient, and specialty provider variables were used.