Including the patient voice in the development and implementation of patient-reported outcomes in cancer clinical trials.

Bonnie AddarioJan GeisslerMarcia K Horn Linda U Krebs Deborah MaskensKathy OliverAnanda PlateErin SchwartzNicole Willmarth

Published in: Health expectations : an international journal of public participation in health care and health policy (2019)

This practical guidance aims to optimize PRO development and implementation in clinical trials, resulting in robust, relevant data that reflect the patient experience and that support decisions made by all stakeholders involved in research and health care.

Keyphrases

clinical trial
healthcare
patient reported outcomes
primary care
quality improvement
papillary thyroid
phase ii
squamous cell carcinoma
electronic health record
anti inflammatory
phase iii
social media
deep learning