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Using a Facebook Forum to Cope With Narcolepsy After Pandemrix Vaccination: Infodemiology Study.

Karin BlombergMats ErikssonRickard BööÅke Grönlund
Published in: Journal of medical Internet research (2019)
The group studied is a good example of social media use for self-help through a difficult situation among people affected by illness and disease. This shows that social media do not by themselves induce trench warfare but, given a good group composition, can provide a necessary forum for managing an emergency situation where health care and government have failed or are mistrusted, and patients have to organize themselves so as to cope.
Keyphrases
  • social media
  • health information
  • healthcare
  • end stage renal disease
  • newly diagnosed
  • ejection fraction
  • public health
  • chronic kidney disease
  • prognostic factors
  • peritoneal dialysis
  • emergency medical