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Action Opportunities to Pursue Responsible Digital Care for People With Intellectual Disabilities: Qualitative Study.

Nienke M SiebelinkKirstin N van DamDirk R M LukkienBrigitte BoonMerlijn SmitsAgnes van der Poel
Published in: JMIR mental health (2024)
This is the first study to provide insight into responsible digital care for people with intellectual disabilities by means of bottom-up exploration of action opportunities to take account of stakeholders' values in designing technology, shaping the context of use, and adjusting the behavior of users. Although part of the findings may be generalized, case-specific insights and a complementary top-down approach (eg, predefined ethical frameworks) are essential. The findings represent a part of an ethical discourse that requires follow-up to meet the dynamism of stakeholders' values and further develop and implement action opportunities to achieve socially desirable, ethically acceptable, and sustainable digital care that improves the lives of people with intellectual disabilities.
Keyphrases
  • healthcare
  • palliative care
  • quality improvement
  • pain management
  • affordable care act
  • decision making