Using Patient Blogs on Social Media to Assess the Content Validity of Patient-Reported Outcome Measures: Qualitative Analysis of Patient-Written Blogs.

Diana M J Delnoij Meggie Derks Laura Koolen Shuka Shekary Jozua Suitela

Published in: JMIR formative research (2023)

Web-based patient stories in the form of blogs reveal how people living with a certain disease experience their health-related quality of life. These stories enable analyses of patients' experiences that can be used to assess the content validity of PROMs. This can be a useful step for researchers who are looking for sets of measuring instruments that match their purposes.

Keyphrases

social media
patient reported
patient reported outcomes
case report
end stage renal disease
chronic kidney disease
ejection fraction
health information
gene expression
mental health
prognostic factors
peritoneal dialysis