Parental perspectives about information and deferred versus two-stage consent in studies of neonatal asphyxia.
Christian Achim MaiwaldCharlotte RoversAnnie JanvierHeidrun SturmMartina MichaelisGeorg MarckmannHans-Joerg EhniChristian F PoetsMario RüdigerAxel R FranzPublished in: Archives of disease in childhood. Fetal and neonatal edition (2023)
In this survey, parents expressed diverse opinions on consent, but the majority preferred SOC over DC. Parents who had experienced emergency admission of their asphyxiated neonates were more trusting. Obtaining parental perspectives is essential when designing studies, while being cognisant that these groups of parents may not represent the opinion of all parents.