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The Compassionate Communities Connectors programme: experiences of supported families and referring healthcare providers.

Samar M AounJohn RosenbergRobyn RichmondBruce Rumbold
Published in: Palliative care and social practice (2023)
Perspectives of patients/families and healthcare providers demonstrated the mediating role of Connectors. Each group saw the Connectors' contribution through the lens of their particular interests or needs. However, there were indications that the connection was shifting the way each group understood and practised care, encouraging or restoring agency to families and reminding healthcare providers that collaborating beyond the boundaries of their roles actually enhances the whole ecology of care. Using a Compassionate Communities approach to mobilise health and community sectors has the potential to develop a more holistic approach that addresses the social, practical and emotional domains of care.
Keyphrases
  • healthcare
  • end stage renal disease
  • mental health
  • newly diagnosed
  • ejection fraction
  • chronic kidney disease
  • peritoneal dialysis
  • prognostic factors
  • palliative care
  • clinical trial
  • quality improvement
  • social media