Establishing the content validity of PROMIS Pediatric pain interference, fatigue, sleep disturbance, and sleep-related impairment measures in children with chronic kidney disease and Crohn's disease.

Christopher B ForrestKathryn D ForrestJennifer L CleggAnna de la MotteSandra AmaralAndrew B GrossmanSusan L Furth

Published in: Journal of patient-reported outcomes (2020)

The study supports the content validity of several PROMIS Pediatric measures for children with Crohn's disease and chronic kidney disease. These findings provide evidence that PROMIS Pediatric measures, developed as universally relevant patient-reported outcomes, may be more broadly applicable to children with chronic disease.

Keyphrases

patient reported outcomes
chronic kidney disease
young adults
end stage renal disease
sleep quality
chronic pain
neuropathic pain
depressive symptoms
peritoneal dialysis
spinal cord