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Widespread service fragmentation for patients and families with tuberous sclerosis complex (TSC) in the Republic of Ireland.

M VasseghiC BehanA ConnollyD CunninghamE DempseyC FlynnM GalvinG GriffinP MoloneyM MurphyY OwenS O'MalleyG O'RourkeO O'SullivanC P Doherty
Published in: Journal of rare diseases (Berlin, Germany) (2024)
The online version contains supplementary material available at 10.1007/s44162-024-00049-8.
Keyphrases
  • ejection fraction
  • newly diagnosed
  • healthcare
  • mental health
  • prognostic factors
  • social media
  • patient reported outcomes
  • psychometric properties