Understanding speech and swallowing difficulties in individuals with Huntington disease: Validation of the HDQLIFE Speech Difficulties and Swallowing Difficulties Item Banks.
Noelle E CarlozziNicholas R BoileauAngela RobertsPraveen DayaluDana L HanifanJennifer A MinerDaniel ClaassenEmily Mower ProvostPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2020)
Findings support the clinical utility of the HDQLIFE Speech and Swallowing PROs and the CPIB for use across the HD disease spectrum. These PROs also have the potential to be clinically useful in other populations.