Patient experiences with prenatal cell-free DNA screening in a safety net setting.
Kirsten A RigganAmelia BarwiseJane Q YapNiamh CondonMegan A AllysePublished in: Prenatal diagnosis (2024)
Patient experiences indicate limited informed consent and decision-making for cfDNA, discordant with professional guidelines on pre-screen counseling. Our findings suggest that there should be additional investment in implementing cfDNA in safety net settings to ensure that patients and providers receive the support necessary for effective patient counseling and follow-on care for the ethical implementation of cfDNA.
Keyphrases
- case report
- decision making
- healthcare
- quality improvement
- end stage renal disease
- mental health
- primary care
- newly diagnosed
- palliative care
- chronic kidney disease
- high throughput
- prognostic factors
- peritoneal dialysis
- pain management
- clinical practice
- hepatitis c virus
- health insurance
- patient reported
- human immunodeficiency virus