ALSFRS-R-SE: an adapted, annotated, and self-explanatory version of the revised amyotrophic lateral sclerosis functional rating scale.

André MaierMatthias BoentertPeter ReilichSimon WitzelSusanne PetriJulian GroßkreutzMoritz MetelmannPaul LingorIsabell CordtsJohannes DorstDaniel ZellerRené GüntherTim HagenackerTorsten GrehlSusanne SpittelJoachim SchusterAlbert LudolphThomas Meyernull null

Published in: Neurological research and practice (2022)

An adapted and annotated version of the ALSFRS-R scale was developed through a multistage consensus process. The decision to include brief explanations of specific scale items and reply options was intended to facilitate ALSFRS-R-SE assessments by both healthcare professionals and patients. Further studies are required to investigate the accuracy and utility of the ALSFRS-R-SE in controlled trials and clinical real-world settings.

Keyphrases

amyotrophic lateral sclerosis
psychometric properties
end stage renal disease
ejection fraction
newly diagnosed
chronic kidney disease
patient reported outcomes
clinical practice