Improving care pathways for people living with rare bone diseases (RBDs): outcomes from the first RBD Summit.

Manju ChandranInes AlvesThomas CarpenterMichelle DavisEdward C HsiaoAnna PetrykJorg Oliver SemlerMarwan Sleiman

Published in: Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA (2023)

In this position paper, we provide an overview of key discussions from the RBD Summit, summarize the subsequent action plan, and discuss the next steps in this continued collaboration.

Keyphrases

healthcare
palliative care
bone mineral density
quality improvement
pain management
bone loss
soft tissue
bone regeneration
postmenopausal women