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Autistic adults' perspectives and experiences of diagnostic assessments that include play across the lifespan.

Emma PritchardCarmen de LemosKatie HowardJenny Louise Gibson
Published in: Autism : the international journal of research and practice (2024)
Play is often included in autism diagnostic assessments. These assessments tend to focus on negatives and how people who are not autistic interpret observable behaviours. It is important to take a neurodiversity-affirmative assessment approach. This involves focusing on what autistic people say and looking at strengths and needs. We wanted to find out how autistic adults experience diagnostic assessments that include play. We asked autistic and non-autistic people to help us design our study and interview questions. We then interviewed 22 autistic adults to find out what they think about the use of play in assessments. We used a qualitative method called interpretative phenomenological analysis to analyse the data. Autistic adults told us about the different ways play was included in their diagnostic assessments. For example, some completed a diagnostic tool called the Autism Diagnostic Observation Schedule. Autistic adults also talked about the importance of considering how autistic people are different to each other. For example, we found that play may not be useful for assessing women or girls who mask. This suggests that professionals should adopt a personalised approach to diagnostic assessments that use play catering to each person's needs. Our findings also suggested that professionals should assess strengths and differences as well as needs.
Keyphrases
  • autism spectrum disorder
  • intellectual disability
  • metabolic syndrome
  • skeletal muscle
  • polycystic ovary syndrome
  • electronic health record
  • data analysis
  • pregnancy outcomes