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The importance of children and young person involvement in scoping the need for a paediatric glucocorticoid-associated patient reported outcome measure.

S SinghalEve Mary Dorothy SmithKate Mary BennettClare E Pain
Published in: BMC rheumatology (2022)
This PPI initiative provided a valuable forum for families, including young children, to share their perspectives. Here, the authors explore the effective use of PPI in a virtual setting and provide a unique case study for the involvement of CYP in PROM development. The monthly PPI group also identified a need for the development of a new PROM related to glucocorticoid medication use and provided unique insights into how such a study could be structured.
Keyphrases
  • patient reported outcomes
  • protein protein
  • emergency department
  • young adults
  • small molecule
  • quality improvement
  • drug induced