Intractable Feeding Intolerance in Children With Severe Neurological Impairment: A Retrospective Case Review of Nine Children Known to a Pediatric Palliative Care Service.
Naomi T KatzMonica S CooperAeshan KularatneAnna PrebbleKathleen H McGrathZoe McCallumGiuliana AntolovichIngrid SutherlandBronwyn H SacksPublished in: The American journal of hospice & palliative care (2023)
'Intractable feeding intolerance' describes a clinical crossroads in a child's life where there is an opportunity to consider the appropriateness of further interventions. Further work should explore predictors of intractable feeding intolerance and the delicate balance between cause or contributor to death. The importance of clinician-family prognostic conversations and goal-concordant care both during life and in the terminal phase is highlighted.