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Description of a multidisciplinary model of care in a French cohort of adult patients with tuberous sclerosis complex.

Pierre PfirmannJerome AupyEva JambonLaetitia IdierMathilde Prezelin-ReyditMarine FermisRaphael DevillardNicolas GrenierChristian CombeClaire Rigothier
Published in: Journal of medical genetics (2020)
We obtained an accurate description of a cohort of adult patients with TSC. Our multidisciplinary approach model allowed us to provide optimal management of patients with TSC with a high level of patient satisfaction.
Keyphrases
  • patient satisfaction
  • quality improvement
  • healthcare
  • pain management
  • affordable care act