Knowledge and attitudes about sudden death in epilepsy among people living with epilepsy and their healthcare providers in Mulago Hospital, Uganda: A cross-sectional study.
Mark KaddumukasaEmmanuel MwesigaNelson SewankamboCarol BlixenSamden D LhatooJennifer B LevinElly KatabiraPublished in: Epilepsia open (2019)
In this Ugandan sample, most PLWE are not aware of SUDEP and epilepsy care providers rarely discuss SUDEP with their patients or patient caregivers. Negative reactions to SUDEP discussions are common but not universal. There is an urgent need for epilepsy educational programs in clinics and targeted communities addressing SUDEP.
Keyphrases
- healthcare
- palliative care
- end stage renal disease
- ejection fraction
- newly diagnosed
- primary care
- public health
- prognostic factors
- temporal lobe epilepsy
- physical activity
- mental health
- case report
- emergency department
- drug delivery
- risk factors
- affordable care act
- social media
- pain management
- health information
- adverse drug
- patient reported
- advance care planning