Login / Signup

Development of the paediatric society of the African league against rheumatism (PAFLAR) JIA registry and clinical profile of JIA in Africa from the PAFLAR JIA registry.

Angela Nyangore MigowaWafa HamdiSoad HashadHala EtayariAwatif AbushhaiwiaHanene FerjaniDorra Ben NessibLobna KharratAlia FazaaLawrence OwinoAyodele FaleyeSheila Agyeiwaa OwusuDoaa Mosad MosaMervat EissaSamah Ismail NasefGehad Gamal ElsehrawyRachel OdhiamboJames OrwaMohammed Hassan Abu-Zaid
Published in: Pediatric rheumatology online journal (2024)
Our study highlights strategies involved in setting up a Pan-African paediatric rheumatology registry that embraces our broad diversity and the vast spectrum of JIA in Africa while comparing the various therapies available to our patients. The PAFLAR JIA registry strives to ensure a comprehensive representation of the diverse healthcare landscapes within the continent. Further longitudinal observation studies are required to ascertain the long-term outcomes of our patients and ultimately help inform policy to create a more favorable health ecosystem to support the healthcare needs of JIA patients in Africa.
Keyphrases