Ethical Considerations for Discrete Choice Experiments with Caregivers.

Judy IllesAshley LawsonPatrick J McDonald

Published in: Journal of empirical research on human research ethics : JERHRE (2022)

We discuss research ethics challenges experienced while running a discrete choice experiment administered to caregivers of children with treatment resistant pediatric epilepsy. We highlight ethical considerations around the study design of the discrete choice experimental paradigm that pertain to vulnerability of and caregiving burden on the population, imbalance of benefit-to-load of participation, and limitations of cultural meaningfulness and generalizability.

Keyphrases

decision making
palliative care
public health
young adults
climate change
physical activity
high intensity
big data
risk factors