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Pseudonymization for research data collection: is the juice worth the squeeze?

Florian KohlmayerRonald LautenschlägerFabian Prasser
Published in: BMC medical informatics and decision making (2019)
We discuss the degree of privacy protection provided by implementing pseudonymization into research data collection processes. We conclude that (1) more research is needed on the interplay of pseudonymity, information security and data protection, (2) problem-specific guidelines for evaluating and reporting risks, threats and countermeasures should be developed and that (3) future work on pseudonymized research data collection should include the results of such structured and integrated analyses.
Keyphrases
  • electronic health record
  • big data
  • healthcare
  • health information
  • risk assessment
  • data analysis
  • current status
  • quality improvement
  • deep learning
  • adverse drug