Development of a decentralized cohort for studying post-acute sequelae of COVID-19 in India in the Data4life Study.

Josh Schilling Sepideh Shokouhi Aisha H Montgomery Girish Nitin Nadkarni Alexander W CharneyAnil ShankerRajbir SinghKenar D Jhaveri Karandeep S SinghPrashant KhadkePraduman Jain

Published in: Communications medicine (2023)

Preliminary findings support the use of digital technology for rapid enrollment and data collection to develop large health research cohorts in India. This demonstrates the potential for expansion of digitally enabled health research in India. These findings also outline the value of person-to-person recruitment strategies when conducting digital health research in modern-day India. Qualitative analysis reveals opportunities to increase diversity and retention in real time. It also informs strategies for improving participant experiences in the current Data4Life initiative and future studies.

Keyphrases

electronic health record
big data
coronavirus disease
sars cov
liver failure
systematic review
mental health
quality improvement
data analysis
respiratory failure
hepatitis b virus
aortic dissection
mechanical ventilation
respiratory syndrome coronavirus