Wonderings to research questions: Engaging patients in long COVID research prioritization within a learning health system.

Ann Blair KennedyAriana MitchamKatherine ParrisFaith AlbertsonLuis Sanchez FerrerConor O'BoyleMaushmi K PatelTracey GartnerAmy M BroomerEvan KatzmanJeanette Coffin Jennifer T Grier Nabil Natafgi

Published in: Learning health systems (2024)

This methodology has implications for the advancement of patient-engaged prioritization both within the scope of Long COVID research and in research on other rare or emerging diseases.

Keyphrases

coronavirus disease
sars cov
end stage renal disease
ejection fraction
newly diagnosed
chronic kidney disease
peritoneal dialysis
patient reported outcomes