A Patient-Centered Website (Within Reach) to Foster Informed Decision-making About Upper Extremity Vascularized Composite Allotransplantation: Development and Usability Study.
Karen B VanterpoolJessica Gacki-SmithBrianna KuramitsuMax DowneyMichelle J NordstromMichelle LukenTiffany RigglemanShannon FichterWithney AltemaJames B BruckerCarisa M CooneyGregory A DumanianSally E JensenMacey L LevanScott M TintleGerald BrandacherElisa J GordonPublished in: JMIR formative research (2023)
The findings suggest that our educational website, Within Reach, provides neutral, patient-centered information and may be a useful resource about UE VCA for individuals with UE amputations, their families, and health care professionals. Health care professionals may inform UE VCA candidates about Within Reach to supplement current VCA education processes. Within Reach serves as a resource about treatment options for patients preparing for scheduled or recovering from traumatic UE amputations. Future research should assess whether Within Reach improves knowledge about UE VCA and enhances informed decision-making about UE VCA as a treatment option.