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The TRUST Study-TRansition US Together: Evaluating the Impact of a Parent- and Adolescent-Centered Transition Toolkit on Transition Readiness in Patients with Juvenile Idiopathic Arthritis and Childhood-Onset Systemic Lupus Erythematosus.

Simran HeeraKaren BeattieZubin PunthakeeBriano DiRezzeJulie HerringtonTania CellucciLiane D HealeMark MatsosJan Willem GorterMichelle Batthish
Published in: Children (Basel, Switzerland) (2024)
Transition readiness improved at each follow-up, the greatest increase was seen after the Toolkit was shared. Parent-adolescent communication quality did not appear to impact changes in transition readiness.
Keyphrases
  • systemic lupus erythematosus
  • juvenile idiopathic arthritis
  • young adults
  • mental health
  • disease activity
  • healthcare
  • childhood cancer
  • quality improvement
  • social media